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2021
1 Goldraij, Gabriel; Tripodoro, Vilma Adriana; Aloisio, Melisa; Castro, Sandra Analiá; Gerlach, Christina; Mayland, Catriona Rachel; Haugen, Dagny Renata Faksvåg.
One chance to get it right: Improving clinical handovers for better symptom control at the end of life. BMJ Open Quality 2021 ;Volum 10.(3) s. 1-7
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2 Haugen, Dagny Renata Faksvåg; Hufthammer, Karl Ove; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Ting, Grace; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Yanneo, Eduardo Garcia; Leppert, Wojciech; Wolszczak, Katarzyna; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Weber, Martin; Ellershaw, John; Mayland, Catriona Rachel.
Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives' Survey within Seven Countries. The Oncologist 2021 ;Volum 26.(7) s. e1273-e1284
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3 McGlinchey, Tamsin; Mason, Stephen R; Smeding, Ruthmarijke; Goosensen, Anne; Ruiz-Torreras, Inmaculada; Haugen, Dagny Renata Faksvåg; Bakan, Miša; Ellershaw, John E.
ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study. Palliative Medicine 2021 s. 1-19
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2020
4 Gerlach, Christina; Baus, Miriam; Bayer, Oliver; Gianicolo, Emiliano; Weber, Martin; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Tripodoro, Vilma Adriana; Passarini, Juliana Nalin; Mayland, Catriona Rachel; Ellershaw, John; Haugen, Dagny Faksvåg.
What do bereaved relatives want to tell us? - Free text comments of the International Care of the Dying Evaluation (i-CODE) survey: a mixed methods approach. Palliative Medicine 2020 ;Volum 34.(1S) s. 97-97
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5 Hansen, Marit Irene Tuen; Haugen, Dagny Faksvåg; Sigurdardottir, Katrin Rut; Kvikstad, Anne; Mayland, Catriona Rachel; Schaufel, Margrethe Aase.
Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway. BMC Palliative Care 2020 ;Volum 19. s. 1-9
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6 Hjorth, Nina Elisabeth; Schaufel, Margrethe Aase; Sigurdardottir, Katrin Rut; Haugen, Dagny Faksvåg.
Feasibility and acceptability of introducing advance care planning on a thoracic medicine inpatient ward: an exploratory mixed method study. BMJ Open Respiratory Research 2020 ;Volum 7.(1) s. 1-10
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7 Mayland, Catriona Rachel; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Wolszczak, Katarzyna; Gerlach, Christina; Weber, Martin; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ting, Grace; Yanneo, Eduardo Garcia; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Ellershaw, John; Leppert, Wojciech; Zambon, Lair; Haugen, Dagny Faksvåg.
In partnership with patients and the public: conducting the international “Care Of the Dying Evaluation” (i-CODE) post-bereavement survey. Palliative Medicine 2020 ;Volum 34.(1S) s. 16-16
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8 Mayland, Catriona Rachel; Tripodoro, Vilma Adriana; Wolszczak, Katarzyna; Goldraij, Gabriel; Gerlach, Christina; Weber, Martin; Passarini, Juliana Nalin; Saad, Ivete Bredda; Zambon, Lair; Ting, Grace; Ellershaw, John; Yanneo, Eduardo Garcia; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Haugen, Dagny Faksvåg.
Putting international research into practice. Using bereaved relatives’ feedback to directly impact the clinical care for those dying from cancer in hospital. Palliative Medicine 2020 ;Volum 34.(1S) s. 89-90
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9 McGlinchey, Tamsin; Mason, Stephen; Goossensen, Anne; Smeding, Ruthmarijke; Torreras, Inmaculada Ruiz; Haugen, Dagny Faksvåg; Lunder, Urska; Nwosu, Amara Callistus; Ellershaw, John.
iLIVE project: using a delphi approach to gain international consensus on core concepts/themes to be included in a transnational hospital volunteer training programme, to support patients at the end of life and their families. Palliative Medicine 2020 ;Volum 34.(1S) s. 218-218
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10 Tripodoro, Vilma Adriana; Goldraij, Gabriel; Wolszczak, Katarzyna; Leppert, Wojciech; Gerlach, Christina; Veloso, Veronica; Gonzalez, Carolina; Castro, Sandra; Aloisio, Melisa; Lewandowska, Dorota; Mayland, Catriona Rachel; Haugen, Dagny Faksvåg.
Proof of concept: quality improvement based on results of the i-CODE survey in Argentina and Poland (Project ERAnet LAC CODE). Palliative Medicine 2020 ;Volum 34.(1S) s. 96-96
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11 Zambrano, Sofia C; Haugen, Dagny Faksvåg; van der Heide, Agnes; Tripodoro, Vilma Adriana; Ellershaw, John; Fürst, Carl Johan; Voltz, Raymond; Mason, Stephen; Daud, Maria L; De Simone, Gustavo; Halfdanardottir, Svandis; Sigurdardottir, Valgerdur; Johnson, Jeremy; Allan, Simon; Hafeez, Haroon; Simoes, Catarina; Sigurdardottir, Katrin Rut; Rasmussen, Birgit H.; Williamson, Paula; Eychmüller, Steffen.
Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol. BMC Palliative Care 2020 ;Volum 19.(1)
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2019
12 Gerlach, Christina; Mayland, Catriona Rachel; Hufthammer, Karl Ove; Tripodoro, Vilma; Goldraij, Gabriel; Leppert, Wojciech; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Passarini, Juliana Nalin; Saad, Ivete Bredda; Hansen, Marit Irene Tuen; Haugen, Dagny Faksvåg.
"Did a member of the healthcare team talk to you about what to expect when your relative was dying?" - "No." Quality of care for cancer patients dying in hospitals: first results from the international CODE (Care of the Dying Evalution) survey.. Palliative Medicine 2019 ;Volum 33. Suppl. 1S s. 68-68
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13 Gerlach, Christina; Mayland, Catriona Rachel; Hufthammer, Karl Ove; Tripodoro, Vilma; Goldraij, Gabriel; Leppert, Wojciech; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Passarini, Juliana Nalin; Saad, Ivete Bredda; Hansen, Marit Irene Tuen; Haugen, Dagny Faksvåg.
"Did a member of the healthcare team talk to you about what to expect when your relative was dying?" - "No."Quality of care for cancer patients dying in hospitals: first results from the international CODE (Care of the Dying Evalution) survey.. 16th World Congress of the European Association for Palliative Care; 2019-05-23 - 2019-05-25
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14 Gerlach, Christina; Weber, Martin; Mayland, Catriona Rachel; Hufthammer, Karl Ove; Tripodoro, Vilma; Goldraij, Gabriel; Leppert, Wojciech; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Passarini, Juliana Nalin; Saad, Ivete Bredda; Zambon, Lair; Ting, Grace; Ellershaw, John; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Haugen, Dagny Faksvåg.
Relatives' wish for information about impending death - room for improvement of quality of care for cancer patients dying in hospitals: the international CODE (Care Of the Dying Evaluation) survey. 2nd Universitäres Centrum für Tumorerkrankungen Mainz Science Day; 2019-09-18 - 2019-09-19
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15 Goldraij, Gabriel; Aloisio, M; Castro, S; Alomar, J; Petri, M; Tripodoro, Vilma Adriana; Gerlach, Christina; Wolszczak, Katarzyna; Leppert, Wojciech; Mayland, Catriona Rachel; Haugen, Dagny Faksvåg.
Participatory action research on quality improvement based on results of the international survey ‘Care of the Dying Evaluation’ (i-CODE) in Córdoba, Argentina. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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16 Goldraij, Gabriel; Melisa, A; Castro, S; Alomar, J; Petri, M; Tripodoro, Vilma Adriana; Gerlach, Christina; Mayland, Catriona Rachel; Haugen, Dagny Faksvåg.
Investigación Acción Participativa sobre la mejora de la calidad en últimos días de vida basado en la encuesta internacional "Care of the dying evaluation" (i-CODE) en Hospital Privado Universitario de Córdoba. X Congreso Argentino de Cuidados Paliativos; 2019-10-30 - 2019-11-02
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17 Goossensen, Anne; Ellershaw, John; Mason, Stephen; Smeding, Ruthmarijke; Ruiz Torreras, Immaculada; Haugen, Dagny Faksvåg; Lunder, Urska; Simon, Judit; van der Heide, Agnes.
Training volunteers to support dying patients, and their families, in the hospital setting - iLIVE study. A Good Ending - Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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18 Hansen, Marit Irene Tuen; Schaufel, Margrethe Aase; Sigurdardottir, Katrin Rut; Kvikstad, Anne; Haugen, Dagny Faksvåg.
Factors affecting quality of end-of-life care - a qualitative analysis of free text comments from the i-CODE survey in Norway. A Good Ending - Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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19 Haugen, Dagny Faksvåg.
CODE International Survey: A picture of current care for the dying in four European and three South American countries. What did we learn?. A Good Ending - Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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20 Haugen, Dagny Faksvåg.
Lege ved livets slutt - paradoks eller privilegium?. Jubileumsseminar, Hospice Søholm og Enhed for lindrende behandling, Aarhus Universitetshospital; 2019-04-05 - 2019-04-05
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21 Hjorth, Nina Elisabeth; Schaufel, Margrethe Aase; Sigurdardottir, Katrin Rut; Haugen, Dagny Faksvåg.
Advance Care Planning with patients having advanced pulmonary disease – A qualitative study in a hospital setting in Western Norway. A Good Ending - Good for all; 2019-11-06 - 2019-11-07
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22 Hjorth, Nina Elisabeth; Schaufel, Margrethe Aase; Sigurdardottir, Katrin Rut; Haugen, Dagny Faksvåg.
Healthcare professionals’ views on implementation of Advance Care Planning for patients with advanced pulmonary disease – a pilot study.. European Association for Palliative Care Congress 2019; 2019-05-23 - 2019-05-25
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23 Hjorth, Nina Elisabeth; Schaufel, Margrethe Aase; Sigurdardottir, Katrin Rut; Haugen, Dagny Faksvåg.
Healthcare professionals' views on implementation of Advance Care Planning for patients with advanced pulmonary diseases - a pilot study. Palliative Medicine 2019 ;Volum 33. Suppl. 1S s. 68-69
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24 Iversen, Grethe Skorpen; Teigen, Sønneve; Sunnevåg, Kari; Haugen, Dagny Faksvåg.
“Do you think we can manage?” End of life care for people with learning disabilities – increased competence for staff in community care settings. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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25 Iversen, Grethe Skorpen; Teigen, Sønneve; Sunnevåg, Kari; Haugen, Dagny Faksvåg.
Tror du vi også kan klare det? Lindrende behandling til mennesker med utviklingshemning. 19. Landskonferanse i Kreftsykepleie; 2019-09-11 - 2019-09-13
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26 Kotlinska-Lemieszek, Aleksandra; Klepstad, Pål; Haugen, Dagny Faksvåg.
Clinically significant drug-drug interactions involving medications used for symptom control in patients with advanced malignant disease: A systematic review. Journal of Pain and Symptom Management 2019 ;Volum 57.(5) s. 989-998.e1
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27 Kvalheim, Siri Flagestad; Cuida Marthinussen, Ileana Mihaela; Haugen, Dagny Faksvåg; Berg, Einar; Strand, Gunhild V; Lie, Stein Atle.
Randomized controlled trial of the effectiveness of three different oral moisturizers in palliative care patients. European Journal of Oral Sciences 2019 ;Volum 127.(6) s. 523-530
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28 Kvalheim, Siri Flagestad; Marthinussen, Mihaela Cuida; Strand, Gunhild V.; Haugen, Dagny Faksvåg; Berg, Einar; Lie, Stein Atle.
Effectiveness of three oral moisturizers in palliative care patients. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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29 Kvalheim, Siri Flagestad; Marthinussen, Mihaela Cuida; Strand, Gunhild V.; Haugen, Dagny Faksvåg; Berg, Einar; Lie, Stein Atle.
Effectiveness of three oral moisturizers in palliative care patients. CED-IADR/NOF Oral Health Research Congress 2019; 2019-09-19 - 2019-09-21
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30 Kvåle, Kirsti; Haugen, Dagny Faksvåg; Synnes, Oddgeir.
Patients' illness narratives - From being healthy to living with incurable cancer: Encounters with doctors through the disease trajectory. Cancer Reports 2019 ;Volum 3. s. 1-7
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31 Kørner, Hartwig; Guren, Marianne; Søreide, Jon Arne; Kørner, Leif; Søreide, Kjetil; Kvaløy, Jan Terje; Haugen, Dagny Faksvåg.
Non-curative treatment of patients with colorectal cancer – a national cohort study. European Society of Coloproctology (ESCP) 14th Scientific and Annual Meeting; 2019-09-25 - 2019-09-27
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32 Mayland, Catriona Rachel; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Stachowiak, Andrzej; Krajewska, Maria; Garcia-Yanneo, Eduardo; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Weber, Martin; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ellershaw, John; Haugen, Dagny Faksvåg.
Assessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure. Palliative Medicine 2019 ;Volum 33.(3) s. 357-368
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33 Mayland, Catriona Rachel; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Tripodoro, Vilma; Goldraij, Gabriel; Weber, Martin; Gerlach, Christina; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ting, Grace; Ellershaw, John; Haugen, Dagny Faksvåg.
The international 'care of the dying evaluation' (CODE) project: using bereaved relatives to assess care for dying cancer patients in Europe and South America. Association for Palliative Medicine of Great Britain and Ireland Supportive & Palliative Care Conference 2019; 2019-03-21 - 2019-03-22
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34 Mayland, Catriona Rachel; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Tripodoro, Vilma; Goldraij, Gabriel; Weber, Martin; Gerlach, Christina; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ting, Grace; Ellershaw, John; Haugen, Dagny Faksvåg.
The international 'care of the dying evalution' (CODE) project: using bereaved relatives to assess care for dying cancer patients in Europe and South America. BMJ Supportive & Palliative Care 2019 ;Volum 9. Suppl. 1 s. A2-A2
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35 McGlinchey, Tamsin; Mason, Stephen; Goossensen, Anne; Smeding, Ruthmarijke; Torreras, Inmaculada Ruiz; Haugen, Dagny Faksvåg; Lunder, Urska; Ellershaw, John.
iLIVE Project: Seeking international consensus on the content of a hospital volunteer training programme to support patients at the end of life, and their families. A Delphi study. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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36 Sigurdardottir, Katrin Rut; Hjermstad, Marianne Jensen; Filbet, Marilene; Tricou, Colombe; McQuillan, Regina; Costantini, Massimo; Autelitano, Cristina; Bennett, Michael I.; Haugen, Dagny Faksvåg.
Pilot testing of the first version of the European Association for Palliative Care basic dataset: A mixed methods study. Palliative Medicine 2019 ;Volum 33.(7) s. 832-849
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37 Sigurdardottir, Katrin Rut; Hjermstad, Marianne Jensen; Filbet, Marilene; Tricou, Colombe; McQuillan, Regina; Costantini, Massimo; Autelitano, Cristina; Bennett, Michael I.; Haugen, Dagny Faksvåg.
Pilot Testing of the First Version of the European Association for Palliative Care (EAPC) Basic Dataset. 16th World Congress of the European Association for Palliative Care; 2019-05-23 - 2019-05-25
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38 Sigurdardottir, Katrin Rut; Hjermstad, Marianne Jensen; Filbet, Marilene; Tricou, Colombe; McQuillan, Regina; Costantini, Massimo; Autelitano, Cristina; Bennett, Michael I.; Haugen, Dagny Faksvåg.
Pilot Testing of the First Version of the European Association for Palliative Care (EAPC) Basic Dataset. Palliative Medicine 2019 ;Volum 33. Suppl. S1 s. 319-320
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39 Tripodoro, Vilma Adriana; Veloso, V. I.; Gonzalez, C; Austerlic, Silvia; Machi, M; Goldraij, Gabriel; Gerlach, Christina; Wolszczak, Katarzyna; Leppert, Wojciech; Mayland, Catriona Rachel; Haugen, Dagny Faksvåg.
Investigación Acción Participativa sobre la mejora de la calidad en últimos días de vida basado en la encuesta internacional "Care of the dying evaluation" (i-CODE) en Buenos Aires (Proyecto ERANET LAC CODE). X Congreso Argentino de Cuidados Paliativos; 2019-10-30 - 2019-11-02
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40 Tripodoro, Vilma Adriana; Veloso, V. I.; Gonzalez, C; Austerlic, Silvia; Machi, M; Goldraij, Gabriel; Gerlach, Christina; Wolszczak, Katarzyna; Leppert, Wojciech; Mayland, Catriona Rachel; Haugen, Dagny Faksvåg.
Participatory action research on quality improvement based on the international survey ‘Care Of the Dying Evaluation’ (i-CODE) in Buenos Aires, Argentina. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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41 Wolszczak, Katarzyna; Gerlach, Christina; Goldraij, Gabriel; Leppert, Wojciech; Mayland, Catriona Rachel; Tripodoro, Vilma Adriana; Haugen, Dagny Faksvåg.
Do relatives of dying patients need emotional support and information about symptoms of incoming death? Project on improvement of quality of care of dying patients based on the results of the research using the CODE questionnaire in the ERANet-LAC project in Poland. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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42 Wouters, Sanne; Allan, Simon; Ellershaw, John; Eychmüller, Steffen; Haugen, Dagny Faksvåg; Fürst, Carl Johan; Korfage, Ida; Lunder, Urska; Roselló, Marisa M; Sigurdardottir, Valgerdur; Simon, Judit; van Zuylen, Lia; van der Heide, Agnes.
iLIVE: an international research programme to support living until the end – protocol for the cohort study. A Good Ending – Good for All. 6th Annual Research Conference of the International Collaborative for Best Care for the Dying Person; 2019-11-06 - 2019-11-07
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2018
43 Gerlach, Christina; Weber, Martin; Mayland, Catriona; Ellershaw, John; Tripodoro, Vilma; Krajewska, Maria; Leppert, Wojciech; Passarini, Juliana Nalin; Saad, Ivete Bredda; Zambon, Lair; Yanneo, Eduardo Garcia; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Haugen, Dagny Faksvåg.
Internationale ‘Care Of the Dying Evaluation’ (CODE): Versorgungsqualität von sterbenden Krebspatienten im Krankenhaus aus Sicht der Angehörigen – Verbundprojekt ERANet-LAC CODE Studienprotokoll und erste Ergebnisse. 12. Kongress der Deutschen Gesellschaft für Palliativmedizin; 2018-09-05 - 2018-09-08
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44 Glesnes, Synnøve; Haugen, Dagny Faksvåg; Taule, Tina.
Ergoterapi – ein unytta ressurs innan palliasjon?. 15. landskonferanse i palliasjon; 2018-09-12 - 2018-09-14
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45 Grotmol, Kjersti Støen; Lie, Hanne Cathrine; Loge, Jon Håvard; Aass, Nina Kathrine; Haugen, Dagny Faksvåg; Stone, Patrick C; Kaasa, Stein; Hjermstad, Marianne Jensen.
Patients with advanced cancer and depression report a significantly higher symptom burden than non-depressed patients. Palliative & Supportive Care 2018 s. 1-7
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46 Hansen, Marit Irene Tuen; Sigurdardottir, Katrin Rut; Iversen, Grethe Skorpen; Haugen, Dagny Faksvåg.
Oversettelse og pilot-testing av spørreskjemaet CODE: “Care Of the Dying Evaluation”. 15. landskonferanse i palliasjon; 2018-09-12 - 2018-09-14
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47 Haugen, Dagny Faksvåg.
Care of the Dying Evaluation. Advances of the International Project ERANet-LAC CODE (Europe and Latin America). 5th Annual Conference of the International Collaborative for Best Care for the Dying Person; 2018-11-08 - 2018-11-09
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48 Haugen, Dagny Faksvåg; Buhaug, Gry Ragnhild; Johnsrud, Liss Mette; Iversen, Grethe Skorpen; Einen, Margrete; von Hofacker, Sebastian; Sigurdardottir, Katrin Rut.
Medikamentskrin for symptomlindring i livets sluttfase. Omsorg: Nordisk tidsskrift for Palliativ Medisin 2018 ;Volum 35.(1) s. 42-47
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49 Haugen, Dagny Faksvåg; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Wolszczak, Katarzyna; Yanneo, Eduardo Garcia; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Weber, Martin; Gerlach, Christina; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Lopes, Luiz Roberto; Ting, Grace; Ellershaw, John; Mayland, Catriona Rachel.
The international ERANet-LAC CODE Project: quality of care for dying cancer patients.. 5th Annual Research Conference of the International Collaborative for Best Care for the Dying Person and 1st Argentine Conference for Research in Palliative Care; 2018-11-08 - 2018-11-09
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50 Hjorth, Nina Elisabeth; Haugen, Dagny Faksvåg; Schaufel, Margrethe Aase.
Advance care planning in life-threatening pulmonary disease: a focus group study.. European Respiratory Journal Open Research (ERJ Open Research) 2018 ;Volum 4.(2) s. -
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