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2020
1 Bentzen, Heidi Beate.
A World View. Webinar on Data Protection Legislation for health research, with a focus on COVID-19; 2020-05-05
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2 Bentzen, Heidi Beate.
Bias and discrimination, misuse, and ethics vs law as a way to regulate AI. Bridging the Gap between New Technologies, Health Research and the Protection of Personal data: GDPR Impact; 2020-09-18
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3 Bentzen, Heidi Beate.
Chat with Kristine Beitland: How governance mechanisms for health data can be designed to share, access, and prevent the risks associated with data collaboration and use. Human-Centric Data Innovation in Spanish and Norwegian Healthcare; 2020-11-19
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4 Bentzen, Heidi Beate.
Current activities at the Nordic and European level to enable personal data transfers for scientific research to non-EEA countries. Schrems II meeting; 2020-10-26
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5 Bentzen, Heidi Beate.
FHI lager app for å spore folk i kampen mot koronaviruset. NRK [Internett] 2020-03-24
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6 Bentzen, Heidi Beate.
FHI-app skal lagre info om dine bevegelser i 30 dager. NRK [Internett] 2020-03-27
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7 Bentzen, Heidi Beate.
GDPR for dummies: A survival guide for genetics research. World Congress of Psychiatric Genetics; 2020-10-22
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8 Bentzen, Heidi Beate.
Genetisk selvtesting av barn. Webinar om gentesting – en farlig selskapslek?; 2020-05-14
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9 Bentzen, Heidi Beate.
In the Name of Scientific Advancement: How to Assess what Constitutes 'Scientific Research' in the GDPR to Protect Data Subjects and Democracy. I: Disinformation and Digital Media as a Challenge for Democracy. Intersentia 2020 ISBN 9781780689753. s. 341-366
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10 Bentzen, Heidi Beate.
Legal aspects of data sharing. Genomic Medicine Sweden – Complex diseases; 2020-09-28
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11 Bentzen, Heidi Beate.
Mapping a moral grey zone: Interview with Heidi Beate Bentzen. EHDN News [Fagblad] 2020-03-02
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12 Bentzen, Heidi Beate.
Moderator: Open Science with Health and Genetic Data: A Contradiction?. CPDP 2020 Data Protection and Artificial Intelligence; 2020-01-23
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13 Bentzen, Heidi Beate.
Overvåker og deler informasjon om koronasmittede. NRK [Internett] 2020-03-18
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14 Bentzen, Heidi Beate.
Transport, indkøbsvaner og mobiltelefoner: Sådan skal data hjælpe med at træffe beslutninger om coronakrisen. DR [Internett] 2020-03-28
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15 Casati, Sara; Ellul, Bridget; Mezinska, Signe; Ljøsne, Isabelle Sylvie Budin; Martin, Gillian; Tzotzartou, Olga; Bentzen, Heidi Beate; Jahns, Roland; Halouzka, Radek; Mayrhofer, Michaela Th..
Mapping European RECs & ethics review processes for biobank-based research. Europe Biobank Week 2020; 2020-11-17 - 2020-11-20
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16 Høstmælingen, Njål; Bentzen, Heidi Beate.
How to operationalise human rights for COVID-19 measures. BMJ Global Health 2020
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17 Johansson, Jennifer Viberg; Shah, Nisha; Kaye, Jane; Haraldsdóttir, Eik; Jónsdóttir, Guðbjörg Andrea; Mascalzoni, Deborah; Bentzen, Heidi Beate; Veldwijk, Jorien.
Identifying the Public's Preferences for Sharing Health Data Digitally. ISPOR Europe 2020; 2020-11-16 - 2020-11-19
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18 Solbakk, Jan Helge; Bentzen, Heidi Beate; Holm, Søren; Heggestad, Anne Kari Tolo; Hofmann, Bjørn Morten; Robertsen, Annette; Alnæs, Anne Hambro; Cox, Shereen; Pedersen, Reidar; Bernabe, Rosemarie de la Cruz.
Back to WHAT? The role of research ethics in pandemic times. Medicine, Health care and Philosophy 2020
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19 Solbakk, Jan Helge; Bentzen, Heidi Beate; Holm, Søren; Heggestad, Anne Kari Tolo; Hofmann, Bjørn Morten; Robertsen, Annette; Alnæs, Anne Hambro; Cox, Shereen; Pedersen, Reidar; Bernabe, Rosemarie de la Cruz.
Høyrisikostudier på alle mennesker i Covid-19-sammenheng er etisk uforsvarlig. Uniforum 2020
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2019
20 Bentzen, Heidi Beate.
AI – Giving medicine an edge and pushing privacy to its edge. 33rd European Conference on Philosophy of Medicine and Health Care; 2019-08-09
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21 Bentzen, Heidi Beate.
Balancing protection and free movement of personal data. Annual AGD Meeting 2019: Artificial intelligence meets genomics; 2019-09-27
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22 Bentzen, Heidi Beate.
Deling av data i forskning. Forum for medisinsk forskningsetikk: Deling av data i forskning; 2019-03-06
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23 Bentzen, Heidi Beate.
Ethical and social issues surrounding the balancing of individual vs. community interests in psychiatric genetics. Ethical issues in Psychiatric Genetic Counselling and Testing – Quo vadis?; 2019-09-11
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24 Bentzen, Heidi Beate.
Europeisk GDPR atferdsnorm for helseforskning. Normkonferansen 2019; 2019-11-27
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25 Bentzen, Heidi Beate.
GDPR-forsker: – Det trengs nye tekniske løsninger. Dagens Medisin [Avis] 2019-03-15
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26 Bentzen, Heidi Beate.
“I ain’t lookin’ to block you up”: International Collaboration and Data Flow Under the EU GDPR. ISBER Regional Meeting: Times They Are a Changin’: Biobanks for the Future; 2019-11-04
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27 Bentzen, Heidi Beate.
Introduksjon til GDPR for helseforskning. Åttende nasjonale forskningskonferanse innen muskelskjeletthelse 2019; 2019-11-08
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28 Bentzen, Heidi Beate.
Introduksjon til GDPR for helseforskning i praksis. Seminar om GDPR, forskning og unge brukermedvirkere; 2019-01-21 - 2019-01-21
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29 Bentzen, Heidi Beate.
Kunstig intelligens og helse. En oversikt over juridiske hovedutfordringer. Fagdag Kunstig intelligens og nærliggende teknologier; 2019-01-17 - 2019-01-17
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30 Bentzen, Heidi Beate.
Oversikt over pågående initiativer for behandling av helseopplysninger. Forum Rettsinformatikk; 2019-09-04
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31 Bentzen, Heidi Beate.
Paneldebattant: Dialogue on the value of health data. EHiN 2019 Norges nasjonale e-helsekonferanse; 2019-11-12
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32 Bentzen, Heidi Beate.
Recommendation on the protection and use of health-related data. EHiN 2019 Norges nasjonale e-helsekonferanse; 2019-11-13
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33 Bentzen, Heidi Beate.
The Legal Regulation of Precision Medicine. Medicine at the Digital Age; 2019-05-07
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34 Bentzen, Heidi Beate.
Trenger vi etiske retningslinjer for kunstig intelligens?. Sikkerhetsfestivalen; 2019-08-28
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35 Bentzen, Heidi Beate.
Utfordringer med økt tilgjenge­lighet av genomiske data. Bestpractice Onkologi/Hematologi 2019
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36 Bentzen, Heidi Beate; Høstmælingen, Njål.
Balancing Protection and Free Movement of Personal Data: The New European Union General Data Protection Regulation. Annals of Internal Medicine 2019 ;Volum 170.(5) s. 335-337
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37 Goisauf, Melanie; Martin, Gillian; Bentzen, Heidi Beate; Ljøsne, Isabelle Sylvie Budin; Ursin, Lars Øystein; Durnová, Anna; Leitsalu, Liis; Smith, Katharine; Casati, Sara; Lavitrano, Marialuisa; Mascalzoni, Deborah; Boeckhout, Martin; Mayrhofer, Michaela Th..
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research. PLOS ONE 2019 ;Volum 14.(9)
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38 Hsieh, Tzung-Chien; Mensah, Martin A.; Pantel, Jean T.; Aguilar, Dione; Bar, Omri; Bayat, Allan; Becerra-Solano, Luis; Bentzen, Heidi Beate; Biskup, Saskia; Borisov, Oleg; Braaten, Øivind; Ciaccio, Claudia; Coutelier, Marie; Cremer, Kirsten; Danyel, Magdalena; Daschkey, Svenja; David Eden, Hilda; Devriendt, Koenraad; Wilson, Sandra; Douzgou, Sofia; Dukic, Dejan; Ehmke, Nadja; Fauth, Christine; Fischer-Zirnsak, Björn; Fleischer, Nicole; Gabriel, Heinz; Graul-Neumann, Luitgard; Gripp, Karen W.; Gurovich, Yaron; Gusina, Asya; Haddad, Nechama; Hajjir, Nurulhuda; Hanani, Yair; Hertzberg, Jakob; Hoertnagel, Konstanze; Howell, Janelle; Ivanovski, Ivan; Kaindl, Angela; Kamphans, Tom; Kamphausen, Susanne; Karimov, Catherine; Kathom, Hadil; Keryan, Anna; Knaus, Alexej; Köhler, Sebastian; Kornak, Uwe; Lavrov, Alexander; Leitheiser, Maximilian; Lyon, Gholson J.; Mangold, Elisabeth; Marín Reina, Purificación; Martinez Carrascal, Antonio; Mitter, Diana; Morlan Herrador, Laura; Nadav, Guy; Nöthen, Markus; Orrico, Alfredo; Ott, Claus-Eric; Park, Kristen; Peterlin, Borut; Pölsler, Laura; Raas-Rothschild, Annick; Randolph, Linda; Revencu, Nicole; Ringmann Fagerberg, Christina; Robinson, Peter Nick; Rosnev, Stanislav; Rudnik, Sabine; Rudolf, Gorazd; Schatz, Ulrich; Schossig, Anna; Schubach, Max; Shanoon, Or; Sheridan, Eamonn; Smirin-Yosef, Pola; Spielmann, Malte; Suk, Eun-Kuyng; Sznajer, Yves; Thiel, Christian T.; Thiel, Gundula; Verloes, Alain; Vrecar, Irena; Wahl, Dagmar; Weber, Ingrid; Winter, Korina; Wisniewska, Marzena; Wollnik, Bernd; Yeung, Ming W.; Zhao, Max; Zhu, Na; Zschocke, Johannes; Mundlos, Stefan; Horn, Denise; Krawitz, Peter M..
PEDIA: prioritization of exome data by image analysis. Genetics in Medicine 2019 ;Volum 21.(12) s. 2807-2814
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39 Høstmælingen, Njål; Bentzen, Heidi Beate.
– GDPR har blitt et symbol på konflikt. Dagens Medisin [Avis] 2019-03-04
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40 Høstmælingen, Njål; Bentzen, Heidi Beate.
EUs personvernforordning har to ansikter. Tidsskrift for Den norske legeforening 2019
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41 Mascalzoni, Deborah; Bentzen, Heidi Beate; Ljøsne, Isabelle Sylvie Budin; Bygrave, Lee Andrew; Bell, Jessica; Dove, Edward S.; Fuchsberger, Christian; Hveem, Kristian; Mayrhofer, Michaela Th.; Meraviglia, Viviana; O'Brien, David R.; Pattaro, Cristian; Pramstaller, Peter P.; Rakic, Vojin; Rossini, Alessandra; Shabani, Mahsa; Svantesson, Dan Jerker B.; Tomasi, Marta; Ursin, Lars Øystein; Wjst, Matthias; Kaye, Jane.
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?. Annals of Internal Medicine 2019 ;Volum 170.(5) s. 332-334
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42 Nicol, Dianne; Eckstein, Lisa; Bentzen, Heidi Beate; Borry, Pascal; Burgess, Mike; Burke, Wylie; Chalmers, Don; Cho, Mildred; Dove, Edward S.; Fullerton, Stephanie; Ida, Ryuichi; Kato, Kazuto; Kaye, Jane; Koenig, Barbara; Manson, Spero; McGrail, Kimberlyn; Meslin, Eric M.; O'Doherty, Kieran; Prainsack, Barbara; Shabani, Mahsa; Tabor, Holly; Thorogood, Adrian; de Vries, Jantina.
Consent insufficient for data release. Science 2019 ;Volum 364.(6439) s. 445-446
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2018
43 Bentzen, Heidi Beate.
Amid GDPR Implementation, European Effort Drafts Code of Conduct for Sharing Health Research Data. GenomeWeb [Internett] 2018-10-25
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44 Bentzen, Heidi Beate.
Doing Right: Law and Precision Medicine. The inaugural meeting of The Nordic Society for Precision Medicine; 2018-06-07 - 2018-06-08
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45 Bentzen, Heidi Beate.
Doing Right: Law and Precision Medicine. Det 10. nasjonale fagmøtet i genetikk; 2018-11-15 - 2018-11-15
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46 Bentzen, Heidi Beate.
Formålsbestemthet. Om prinsippet og implikasjonene av prinsippet. Personvernkonferansen; 2018-12-07
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47 Bentzen, Heidi Beate.
Panelsamtale: Fra forskning og kunnskap til handling!. Verdien av helsedata; 2018-01-10 - 2018-01-10
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48 Bentzen, Heidi Beate.
Personvern og datadeling i medisinsk og helsefaglig forskning. Forskningsetisk forum 2018; 2018-09-18 - 2018-09-18
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49 Bentzen, Heidi Beate.
Session chair: Brave New World: Learning Health Systems. Helsam sommerseminar 2018: Pandora’s Box: New Health Technologies; 2018-06-04
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50 Bentzen, Heidi Beate.
Shedding Light on Legal Aspects of Genetic Data Processing in the Cloud. EHiN 2018 Norges nasjonale e-helsekonferanse; 2018-11-13 - 2018-11-13
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